A day I never thought would come… At just 4 days old, Elijah was diagnosed with a rare metabolic condition called phenylketonuria (PKU). I still remember sitting in the @akronchildrens parking lot, crying at the thought that I’d never get to share a beer 🍻 and chicken wings 🍗 with my first child. Fast forward ⏩ 13 years and 6 months — Eli’s protein tolerance has increased 900% in just two months on @ptctherapeutics’ new medication, SEPHIENCE. This was his first time trying dad’s steak 🥩 off t
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A day I never thought would come… At just 4 days old, Elijah was diagnosed with a rare metabolic condition called phenylketonuria (PKU). I still remember sitting in the @akronchildrens parking lot, crying at the thought that I’d never get to share a beer 🍻 and chicken wings 🍗 with my first child. Fast forward ⏩ 13 years and 6 months — Eli’s protein tolerance has increased 900% in just two months on @ptctherapeutics’ new medication, SEPHIENCE. This was his first time trying dad’s steak 🥩 off t
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