The PHG Foundation warmly welcomes the recently published WHO principles for human genome data collection, access, use and sharing. It is a timely and important contribution to global governance, ...

Abstract: As global privacy regulations such as GDPR, CCPA, and DMA continue to evolve, organizations face increasing challenges in balancing regulatory compliance, user trust, and operational ...

Safety, security, accuracy, reliability and confidentiality of personal information remain at the top of the priority list of African countries working on improving their data governance frameworks.

The FAIR principles, which provide foundational guidance for sharing data and metadata, were published in Scientific Data in 2016 (Wilkinson, et al). Since then, the core concepts of Findable, ...

Data collection is the process of gathering and measuring information used for research. Collecting data is one of the most important steps in the research process, and is part of all disciplines ...